My mother and I both have aniridia.

My mother’s health significantly declined in 2025, as she struggled with the impacts of going blind, having falls and other effects of old age. And that in turn greatly increased my responsibilities as an unpaid carer for her. I’m documenting our journey in the hope that it raises awareness about:

• Mum’s physical and mental health issues
• the impact on me
• the support we seek and receive.

Mum has talked to a fellow member of Aniridia Network through the befriending service. They were lovely and had a lot of understanding about what she’s going through. It gave Mum some much-needed reassurance that everything she was experiencing was normal and she’s not alone. 

I also described my experiences on the RNIB Connect Radio Good Company programme.