Annual Report 2024-2025

Read details of what our officials, members and supporters did as well our finances between 1 April 2024 and 31 March 2025 in the Aniridia Network Annual Report for 2024/25.

Aniridia Network Annual Report 2024/2025 title slide

Key points

  • After a year with none, 2 people did fundraising plus a legacy donation
  • Several useful events: meetups, conference and leadership academy
  • Moved from Twitter/X to Threads and BlueSky
  • Membership numbers steady
  • Very low amount of volunteering
  • Appointed new Medical Advisors
  • Developing safeguarding policy and practices

Thanks to the the amazing input by everyone who helped with all these activities.

However, we continue to really struggle to do some basic things well and rely too much on a few very active volunteers. We badly need more people to help us achieve our goals. Please volunteer and fundraise if you can.

The report will be received at the charity’s Annual General Meeting 2025

Katie, James and Andy, the trustees of Aniridia Network
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About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.
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