Several of our members affected by WAGR enjoyed meeting in Sussex recently Parents Aaron and Michelle brilliantly organised the 2-day event with International WAGR Syndrome Association (IWSA). Aniridia Network trustee James went along to speak with people and fly our flag. Nearly everyone with WAGR has aniridia.

Delegates came to Arundel from around the world for a barbeque on Friday night. Then Saturday began with a group photograph.

The conference kicked off with a welcome from John Morris IWSA Board Chair.

Next Linda, Shari and Kelly gave great progress updates on the internationalisation, research, engagement and overall state of IWSA. It was wonderful to hear of such dedication quality and amount of work being done.

The first guest speaker was Professor Mariya Moosajee from Moorfield Eye Hospital. She detailed causes, impacts and ways of dealing with aniridia.

Lastly Professor Ngozi Oluonye gave a presentation about behavioural challenges for children with WAGR with insights from seeing patients at her clinics at Moorfields and Great Ormond Street Hospitals.

The weekend was a big success. Everyone had a great time. A massive well done and thank you to all the volunteers and donors who made it possible.

The next event in the calendar is WAGR Awareness Day on 13 November. What would you like to see happen in the UK to mark it?