Q&A with girl with aniridia

Posted on Mar 1, 2025 by Aniridia Network

Lacey has put out a great video of her answering questions about her life with aniridia. In a rare outing on YouTube Lacey is 18 and studying at university in the UK and one of our members. They responded to queries from their 1500+ followers on TikTok and Instagram about what its like for her to have visual impairment.

Aniridia Network has an Instagram account but not TikTok. What do you think we should we do with those channels?

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About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.
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