We held this great event online and it was completely FREE to attend.

We had a great line up of speakers, to talk about aniridia related themes. From personal experiences to cutting edge research, education and leadership – something for everyone!

People came along to meet others with aniridia, their families, and the fantastic medical and
scientific experts growing our knowledge on aniridia.

I felt included, informed and more hopeful for my daughter

Huge thanks to volunteer Tiereny McGuire for organising this event and all the speakers for their time.

Agenda

Supporting children with aniridia in education

Gayle Johnson, Qualified Teacher For Vision Impairment, Dorset Council, Vision Support Service

Results of research into The impact of sight loss between adults with sporadic and familial aniridia

Helen Campbell, Student in MSc in Genetic and Genomic Counselling at Cardiff University School of Medicine

Progress on developing eyedrops to treat aniridia-associated keratopathy

Professor Martin Collinson, The Institute of Medical Sciences, University of Aberdeen

Aniridia Network Annual General Meeting 2024

Presentation of the charity’s annual report, accounts and trustee election results by Katie, Andy & James the Aniridia Network trustees.

Retinal detachments in Aniridia research at Moorfields

Vivienne Kit, Ophthalmology Researcher, UCL Institute of Ophthalmology

3D corneal organoids for disease modelling and limbal stem cell deficiency cell therapy research

Dulce Lima Cunha, Postdoctoral Researcher, Radboud University

Taking part in the European Aniridia Leadership Academy – Good things come to those who hustle

Haya Hassan, person with sporadic aniridia

After party & chat

A chance to chat online with fellow patients and parents attending conference, as well as our wonderful speakers.

I had never met anyone else with aniridia. I wondered how I would feel. But someone said to me how pleased they were to meet me, as someone with aniridia! It was the opposite way round to what I thought would happen – a moment I will never forget.