Seven peoople with aniridia came to the pub in St Pancras Station celebrate Aniridia Day together this year. The youngest was 19, the oldest 67. After buying them welcome drinks there’s was lots of great chat including about about studying and careers with a visual impairment.

It was really positive to hear about all the things people with aniridia are doing, such as Phds, sports science, journalism and websites.

Dan

What is a meet up? Why come?

You may be sceptical or nervous about coming to a meet up. Tiereny wasn’t sure about our last event. Afterwards she said:

“Honestly, I was surprised at how much I did enjoy myself. I really loved hearing about other’s experiences, finding out what they did and how they got there.
It was also interesting and almost strange (in the best way) to hear a lot of my own day-to-day struggles mirrored in others. Having people understand these difficulties; on a level that even the most empathetic non-visually impaired person just can’t.”

Read more about our past brilliant meet ups

Aniridia Day

This is an annual moment to coordinate activities by individuals and organisations that:

• brings people affected by aniridia together
• increases understanding of aniridia,
• raises funds
• recruits volunteers

Aniridia Day is an international event on the date of the solstice, because of the significance of bright light to people with aniridia.

• Find out more on the Aniridia Day website.
• Join in on the Aniridia Day Facebook group.
• Get the latest news at Aniridia Day on Twitter.