We held a wonderful meet up of people affected by aniridia in Kensington. It was after the Sight Village exhibition where we had a stall. It was a brilliant day and evening where we talked about all aspects of aniridia with lots of attendees.

Sight Village

This exhibition showcased technology, kit and support services for people who are blind or partially-sighted. It is aimed at visually impaired people plus professionals and business that serve them. 

This was the first time we have had a our own stall at any event. It let us meet many people to improve their understanding of aniridia and raise the profile of our charity. We met people who have friends with aniridia, who took our leaflets to pass on. Council support workers signed up to our maling list. Two very kind people even put £20 each in our donations tin after hearing about our work!

Thanks go to volunteers Glen, Andy and James for running the stall.

Aniridia meet up

We moved on for dinner and a get-together at a nearby food court with other patients and relatives.

11 people came along for excellent chat about aniridia and to enjoy the choice of eateries: pizza, sushi, Thai and middle eastern.

This was my first meet up and I definitely look forward to going to my next one. It was great to meet some really cool people and get to know them”.

Tiereny

It was good to chat to others there. It’s always encouraging to hear of others experiences and challenges  and how they make adaptions to cope with aniridia. Sometimes its just the simplest of things like not noticing people waving at you or finding people in a large place which affect us the most, but its good to chat over these things. It was also good to hear about how those with aniridia are still able to live full lives, both in and outside of work.

Johnathan