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JULBO Kids sunglasses with loop SP4
BOOK: Aniridia and WAGR Syndrome: A Guide for Patients and Their Families
BOOK: Aniridia: Recent Developments in Scientific and Clinical Research
Monthly Archives: Aug 2021
Golf competion raffles raise £1000
The Tidworth Garrison Golf Club runs an annual open competition for seniors, and alongside it a fundraising raffle. For the past 2 years Vice Captain John has arranged for it to be in aid of aniridia. His 4 year granddaughter … Continue reading
Katie: Judo Paralympian with aniridia
To show what’s possible for a person with aniridia, we checked in with one competing in judo at the Tokyo Paralympics. Meet Katie, part of Team USA. I’m Katie Davis from Sacramento California. I was born with aniridia and nystagmus, … Continue reading
Amanda: Goalball Paralympian with aniridia
To demonstrate the amazing things a person with aniridia can achieve, we interviewed one competing at their 3rd Paralympics in Tokyo. Amanda is part of Team USA, hoping to better her USA Women’s Goalball team’s bronze medal won in 2016. … Continue reading
Tricia’s fundraising hike up Snowdon
Tricia was motivated to raise mone for Aniridia Network by her 8 year old granddaughter. Olivia is a very bright fun loving child with sporadic aniridia. Her plan was to get sponsored to walk up and down Snowdon; the highest … Continue reading
5th European Aniridia Conference
We at Aniridia Network organised the latest edition of the European Aniridia Conference. It is a biennial event that brings together researchers, practitioners and diagnosis carriers, as well as industry representatives. They share the latest scientific know-how, experiences and ideas … Continue reading
Posted in International, Medical staff talking, Research
Tagged Aniridia Europe, Conference, European Aniridia Conference, event, meeting
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