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Category Archives: Medical staff talking
Cornea tattoos
Recent press and meeting reports have described corneal tattooing as a potential solution for poor vision caused by injuries to or disease of the iris, up to and including total aniridia. It is probably important to realise at the start that corneal tattooing … Continue reading
Diagnosis difficulties – a father’s success
Three years after complaining that his child was not diagnosed with aniridia until she was a year old, a dad has spurred change that could prevent it happening to others. Fuad’s campaign has led to the NHS recognising that in … Continue reading
Review of Aniridia Network UK Conference 2013
By Sarah Conference 2013 was the first Aniridia Network UK (ANUK) conference that I had attended. I had quite an intense experience as I was there in both personal and official capacities – having aniridia and being part of the conference … Continue reading
Solar sneezing – effect of light on the nose and brain
I have aniridia and I noticed that when exposed to brightness, particularly sunlight I sneeze within a minute. While taking part in the National Institutes for Health research I took the opportunity to ask Dr Han why this might be. … Continue reading
Knighthood for member of our medical panel
Professor Peng Tee Khaw, a who sits on the Aniridia Network UK medical panel, was awarded a knighthood in the Queen’s 2013 Birthday Honours. The consultant ophthalmic surgeon received the honour for services to ophthalmology. At the Aniridia Network UK … Continue reading
Protected: Woman with aniridia is first to get new corneal stem cell transplant in UK
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Posted in Medical staff talking, Patients' tales, Research
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A rare glimpse into the ordinary
The National Institutes Of Health have published an article and video about their study in to obesity and WAGR/11p deletion syndrome. It features Aniriida Network UK trustee James who took part as a ‘aniridia only’ patient. You can also read … Continue reading
Posted in Medical staff talking, National Institute for Health WAGR study
Tagged NIH, obesity, WAGR
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Protected: Presentations from Conference 2012
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Posted in Aniridia Network news, Education professionals sharing, Medical staff talking, Parents' accounts
Tagged Conference, fundraising, glaucoma, QTVI
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Invitation to the Oslo Aniridia Conference
Aniridi Norge (the Norwegian aniridia association) has organised the first European scientific conference about aniridia as well as an international gathering for the aniridia community. You are invited between 8 and 10 June 2012. James and Katie from Aniridia Network … Continue reading
Posted in Medical staff talking, Parents' accounts, Patients' tales, Research
Tagged Aniridi Norge, Conference, meeting, Oslo
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Dr Agarwal describes using a glued iris prosthesis
Ophthalmic surgeons have described various techniques to fix iris deficiencies. For the most part, these improve the patient’s visual quality. In this column, Dr Agarwal describes a surgical technique of using a glued iris prosthesis, namely a PMMA aniridia intraocular … Continue reading
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