Search
-
Become a member
-
Patients, parents and professionals in the UK/Ireland - join Aniridia Network for free to get specialised support for youself or those you care for.
-
-
Get news by email
-
Be alerted to our news about aniridia and charity activities by entering your email address.
- Join 128 other subscribers.
Category Archives: Aniridia Network news
Aniridia Network Online Conference 2020
This year’s Aniridia Day was more important than ever. The absence of our usual conference, due to pandemic restrictions, made it vital to find another way of connecting aniridia patients with one another, and with those who support them. We … Continue reading
2020 Annual General Meeting
Held online on 21 June 2020 Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, annual report, charity, meeting, registration
5 Comments
Annual Report 2019-2020
Read details of what our officials, members and supporters did and our finances between 1 April 2019 and 31 March 2020. Thanks to great efforts by everyone who helped with these achievements Continue reading
Get a call to ‘Ask the expert’ about aniridia
Six members got to speak with an expert who cares for lots of patients with aniridia and has a detailed knowledge of the field A doctor who specialises in aniridia very generously offerred one-to-one calls with those affected by the … Continue reading
Scotland & London Meet-Ups
This month we held 2 successful meet-ups in different parts of the UK, bringing together a variety of people affected by aniridia. In the north we were proud to hold our first ever event in Scotland, when trustee Eleanor Burke … Continue reading
Our soapy gift to volunteers
We’ve said thank you for the great efforts of our volunteers by giving them soap. We also sold some to members to raise money. There’s a nice little story behind this oddity. The liquid hand soap is made by visually … Continue reading
2019 Annual General Meeting
138, Digbeth, Birmingham, B5 6DR on 1 June 2019 at 10:40am Continue reading
Posted in Aniridia Network news
Tagged AGM, Annual General Meeting, annual report, charity, meeting, registration
2 Comments
Annual Report 2018-19
Read details of what our officials did and our finances between last April 2018 this March in the Aniridia Network Annual Reports for 2018/19. In summary, thanks to great efforts by the team, Aniridia Network has a had a good … Continue reading
Dave’s trustee nomination
Dave McKay has nominated himself to be a trustee of the Aniridia Network. There will be an election for him and any other nomintees at the Annual General Meeting on 1 June. Dave has been our Conference Officer for the … Continue reading
£200,000 aniridia drug research, based and funded in the UK underway
Research into the growth of eyes with aniridia has begun, funded by Aniridia Network and two families in the UK. In 2018, for the first time, Aniridia Network excitedly partnered with Fight for Sight to offer a £15,000 grant for … Continue reading
