Author Archives: amy5woodward15

Rare Disease Day 2024

Posted on Feb 24, 2024 by amy5woodward15

300 million people worldwide are living with a rare disease, including 3.5 million (1.6%) in the UK. There are over 7,000 rare diseases, one of these being aniridia. February 29 is Rare Disease Day, a time to raise awareness and … Continue reading →

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Conference 2023: Amy’s experience as a first-time attendee

Posted on Sep 2, 2023 by amy5woodward15

I have lived with aniridia since birth; and no matter how many ‘specialised’ doctors you see or how many other people with visual impairments you meet, you still feel isolated, different, and misunderstood. Now I don’t speak for everyone when … Continue reading →

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Posted in Patients' tales | Tagged , | 1 Comment