Living with aniridia and want to make a difference?
Help a student with a groundbreaking research project!

About the project

Sam is a Phd student at University of Edinburgh. Before they did research at Max Planck Institution. They are diving deep into understanding aniridia and its effects on brain development. Using amazing new technology, Sam is growing brain cells in the lab to uncover the secrets of early brain development affected by aniridia.

With your help they hope to improve scientists’ understanding of neurology that could lead to treatments or other measures to improve quality of life for people with conditions such as aniridia.

Who they need

They are looking for someone with aniridia who’s excited to meet up regularly to discuss the research. Sam hopes you will actively contribute to their work with your own ideas and lived experience so that both of you learn from each other.

No special skills or knowledge are needed – just your curiosity and willingness to share your experiences.

How you will meet

The meetings will be every 1-2 months for an hour each time. It can be online or in person at Edinburgh University. You can include family members too!

You can get reimbursed for travel time and expenses up to £50 for each meeting.

What’s in it for you

• Learn about cutting-edge brain research.
• Share your story and ideas.
• Help shape the future of aniridia research.

If you’re interested, email samuel.heczko@ed.ac.uk this week to set up a casual first meeting. Have a friendly chat over coffee or tea, and see how you can work together to make a difference!