To mark Rare Disease Day on 28 February 2019, two of the top specialists in Europe, made a commitment to keep researching aniridia.
Thanks to the French aniridia group Geniris for making this video, that we added subtitles to.
Also check out @welleyenever‘s brilliant photo diary, including insights into life with aniridia. It won a competition held for last year’s Rare Disease Day – congratulations. Be sure to check out his many other excellent blog posts too.