Professors’ Bremond Gignac and Rama message for Rare Disease Day 2019

To mark Rare Disease Day on 28 February 2019, two of the top specialists in Europe, made a commitment to keep researching aniridia.

Thanks to the French aniridia group Geniris for making this video, that we added subtitles to.

Also check out @welleyenever‘s brilliant photo diary, including insights into life with aniridia. It won a competition held for last year’s Rare Disease Day – congratulations. Be sure to check out his many other excellent blog posts too.

About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.
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