To get answers to questions on aniridia and meet people affected by it, a great resource is the Aniridic Family group on Facebook.

It has over 500 members from all over the world and is still growing. Anyone can start a discussion for example on genetic testing, surgery and TV watching habits. There are lots of very useful and interesting replies from people with personal experience.

News articles about people with aniridia and research are also often posted to the group. So it’s a great way to stay up to date on the subject.

If you are on Facebook just visit the Aniridic Family group and use the “Join group” button. Without a Facebook account you will not be able to access it.

Remember that there is also a Aniridia Network UK page on Facebook. Use the Like button to get the latest from us about aniridia issues in the UK in your news feed.