Aniridic Family group on Facebook

To get answers to questions on aniridia and meet people affected by it, a great resource is the Aniridic Family group on Facebook.

It has over 500 members from all over the world and is still growing. Anyone can start a discussion for example on genetic testing, surgery and TV watching habits. There are lots of very useful and interesting replies from people with personal experience.

News articles about people with aniridia and research are also often posted to the group. So it’s a great way to stay up to date on the subject.

If you are on Facebook just visit the Aniridic Family group and use the “Join group” button. Without a Facebook account you will not be able to access it.

Remember that there is also a Aniridia Network UK page on Facebook. Use the Like button to get the latest from us about aniridia issues in the UK in your news feed.

About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.
This entry was posted in Parents' accounts, Patients' tales and tagged . Bookmark the permalink.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.