Search
-
Become a member
-
Patients, parents and professionals in the UK/Ireland - join Aniridia Network for free to get specialised support for youself or those you care for.
-
-
Get news by email
-
Be alerted to our news about aniridia and charity activities by entering your email address.
- Join 128 other subscribers.
Category Archives: Aniridia Network news
Give as you Live – a simple way to raise money for Aniridia Network UK
Would you like to raise money for Aniridia Network UK? Do you shop online? Then why not join Give as you Live? It’s an online shopping portal run by Everyclick.com featuring many well known high street stores such as: Marks … Continue reading
Katie raises over £800 doing the Great North Run
You may remember that recently Katie Atkinson took part in the Great North Run to raise money for Aniridia Network UK. Katie completed the half marathon race in 3 hours and 40 minutes and raised over £750 for Aniridia Network … Continue reading
Aniridia Network UK is founding member of new Aniridia Europe organisation
Aniridia Network UK are very pleased to announce the creation of Aniridia Europe, a federation of aniridia patient associations, support groups and individuals from across Europe. We have been collaborating with colleagues from across Europe for the past few years. … Continue reading
Posted in Aniridia Network news
1 Comment
Behold our new logo
A new logo for Aniridia Network UK has been unveiled. It features an eye and a variety of people coming together to help each other. The new Aniridia Network UK logo “It better illustrates the purpose and ethos of the … Continue reading
Protected: Newcomer’s review of Conference 2011
There is no excerpt because this is a protected post.
Posted in Aniridia Network news, Parents' accounts
Tagged Conference
Enter your password to view comments.
Conference 2011 review
The Aniridia Network UK conference 2011 was on 14 May. It was a big success. Newcomer Jane said “The highlight of the day for me was definitely being able to meet other parents of children with aniridia, sharing experiences with those … Continue reading
Pig & Pimms Garden Party in aid of Shine The Light On Aniridia
By Elly Chappele Shine The Light On Aniridia has been been raising funds to enable research for a cure for Aniridia to begin this year. we hope, at Moorfields Eye Hospital in London under Dr Julie Daniels and her team. … Continue reading
We are now an official charity
Aniridia Network UK is extremely pleased to announce that we have been recognised as a charity. Our reference number is XT26830. It is a big step forward as it gives us an additional level of respectability and other benefits. HM … Continue reading
Protected: 2011 Annual General Meeting and trustee’s plans
There is no excerpt because this is a protected post.
Posted in Aniridia Network news
Tagged Conference, strategy, trustees
Enter your password to view comments.
Aniridia in Europe – Meeting in Paris
Recently Aniridia Network UK was invited to attend a meeting in Paris of all the aniridia support groups in Europe. Eurodis (Rare Diseases Europe) had kindly agreed to help fund the meeting, providing us with 300 euros to attend so … Continue reading
