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Author Archives: Aniridia Network
Protected: Buddy scheme profiles needed
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Paralympians with aniridia
The most decorated paralympian ever has aniridia. She and at least two athletes who have aniridia were at the London 2012 Paralympics. There might also have been a runner and a physiotherapist with aniridia too. Most decorated Trischa Zorn from … Continue reading
Child with aniridia walked to fundraise for ANUK
A four year old child with sporadic aniridia has raised over £1,000 by walking two miles in aid of Aniridia Network UK (ANUK). Tora, is blind in one eye and only has peripheral vision in the other. She was joined … Continue reading
Protected: New trustee Sarah reflects on her first board meeting
There is no excerpt because this is a protected post.
The doctor told me my newborn baby girl was blind
Have you ever been punched in the gut? Punched so hard that you can’t breathe, that you’re nauseous and you can’t think of anything but the shock? That’s exactly how I felt on December 12, 2011 when the doctor told … Continue reading
Sarah’s introduction
Sarah successfully stood for election to be an Aniridia Network UK trustee in 2012/13. She couldn’t be at the annual general meeting in person. This is the nomination statement she provided instead. I have aniridia. Over the years I have … Continue reading
Andrew’s introduction
Andrew successfully stood for election to be an Aniridia Network UK trustee in 2012/13. He couldn’t be at the annual general meeting in person because he was busy “in the process of making homemade bread and cakes with a bunch … Continue reading
Nigel’s introduction
Nigel successfully stood for election to be an Aniridia Network UK trustee in 2012/13. He couldn’t be at the annual general meeting in person. This is the nomination statement he provided instead. I have aniridia and grew up when aniridia … Continue reading
Conference 2012 review
“A fantastic and informative event” is how those who were there described the Aniridia Network UK Conference 2012. A mix of presentations, discussion time, formal elections and a social event – it was the biggest event we have staged to … Continue reading
Lois’s poem
Lois was inspired to write this poem during the Aniridia Network UK Conference 2012. What we see, is just the trunk of the tree. Competent and confident, in our own little way. No different from the king of Norway. Whether … Continue reading
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