Category Archives: ANUK news

The latest from the Aniridia Network UK board

Annual Report 2017-2018

Details of what our officials did between April 2017 and March 2018  are in the Aniridia Network Annual Report 2017-18. There is also the Aniridia Network Financial Reports 2017-18. These were presented at the Annual General Meeting on 14 April … Continue reading

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Our first grant for UK research into aniridia

We are thrilled to announce a grant for research into aniridia! Aniridia Network UK has partnered with charity Fight For Sight to each contribute half the money to a £15,000 grant. The money is only available to UK academic or medical institutions. Get more … Continue reading

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Charity registration achieved

From today Aniridia Network has full charity status. This is excellent and exciting! It means we have more potential to get funds and support, leading towards being able to do much more. Previously we were only registered with HMRC as a charity … Continue reading

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London meet-up 2017

This evening we held an informal get-together in London, after the excellent, free Sight Village event. We met at Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY. The meetup was hosted by James, one of the ANUK’s trustees, and volunteer Glen, both of whom have aniridia … Continue reading

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Attending the Genetic Alliance Conference 2017

Today Genetic Alliance held their Annual Conference in London, entitled “Upskilling Our Members”, with many charities taking part. Aniridia Network trustee James Buller attended the event, taking the opportunity to engage with many leaders of charities very similar to our … Continue reading

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New Treasurer and bank

We have a new Treasurer. Emily Nash took up the role at the start of March 2017. Trustees Katie, James and Martin voted to co-opt Emily on to the Board at their February meeting. The post had been vacant for … Continue reading

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Win up to £40 in the aniridia poetry competition

Write a poem about your experience of aniridia, then send it to us and you could win shopping vouchers worth £40! Join us in taking part in the international poetry competition to celebrate the first world Aniridia Day on 21 June. … Continue reading

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Annual Report 2016-2017

Details of what our officials did between April 2016 and March 2017  are in the ANUK Annual Report 2016-17. There is also the ANUK Financial Report 2016-17.

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First aniridia meeting in Ireland review

The first meeting of Aniridia Network UK in Ireland took place on Saturday 8th April 2017, at the National Council for the Blind of Ireland (NCBI) in Dublin. And it was a great success. The Ireland group was set up … Continue reading

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