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Category Archives: ANUK news
Our first grant for UK research into aniridia
We are thrilled to announce a grant for research into aniridia! Aniridia Network UK has partnered with charity Fight For Sight to each contribute half the money to a £15,000 grant. The money is only available to UK academic or medical institutions. Get more … Continue reading
Charity registration achieved
From today Aniridia Network has full charity status. This is excellent and exciting! It means we have more potential to get funds and support, leading towards being able to do much more. Previously we were only registered with HMRC as a charity … Continue reading
London meet-up 2017
This evening we held an informal get-together in London, after the excellent, free Sight Village event. We met at Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY. The meetup was hosted by James, one of the ANUK’s trustees, and volunteer Glen, both of whom have aniridia … Continue reading
Changing our name
We are planning to change our name! We intend to drop the ‘UK’ and simply be ‘Aniridia Network’. The main reason is to be inclusive for people affected by aniridia in Ireland, and there are other benefits too. We want … Continue reading
Attending the Genetic Alliance Conference 2017
Today Genetic Alliance held their Annual Conference in London, entitled “Upskilling Our Members”, with many charities taking part. Aniridia Network trustee James Buller attended the event, taking the opportunity to engage with many leaders of charities very similar to our … Continue reading
New Treasurer and bank
We have a new Treasurer. Emily Nash took up the role at the start of March 2017. Trustees Katie, James and Martin voted to co-opt Emily on to the Board at their February meeting. The post had been vacant for … Continue reading
Win up to £40 in the aniridia poetry competition
Write a poem about your experience of aniridia, then send it to us and you could win shopping vouchers worth £40! Join us in taking part in the international poetry competition to celebrate the first world Aniridia Day on 21 June. … Continue reading
First aniridia meeting in Ireland review
The first meeting of Aniridia Network UK in Ireland took place on Saturday 8th April 2017, at the National Council for the Blind of Ireland (NCBI) in Dublin. And it was a great success. The Ireland group was set up … Continue reading
Insights from UK Genetic Disorders Leadership Symposium 2017
Advice for creating a definitive source of information about a syndrome and the opportunity to be involved in Jeans For Genes Day were just some of the results of the latest event we attended. Aniridia Network (ANUK) Trustee James was among … Continue reading
First aniridia meeting in Ireland
Following through on her pledge to start an aniridia group in Ireland, Eleanor has organised its first meeting. She has brilliantly secured the support and a room at the National Council for the Blind Ireland. Saturday 8 April 2017 start 11.15 … Continue reading
