Category Archives: ANUK news

The latest from the Aniridia Network UK board

Annual Report 2020-2021

Read what our officials, members and supporters did and about our finances last year in the Aniridia Network Annual Report for 2020/21. Continue reading

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Review of our achievements since last Aniridia Day

To mark Aniridia Day 2021, Aniridia Europe invite us and other paitent associations to make a 2 minute film about our achievements since Aniridia Day 2020. Here is the video and a transcript. More details to come soon in our … Continue reading

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Members + Supporters clarification and data check

As a charity Aniridia Network has a responsibility to ensure that we are governed and keep data about people properly. A key part of this is ensuring that the right people can vote to elect our trustees and decide important … Continue reading

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Notice of 2021 Annual General Meeting

Notice is hereby given that the Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation will be held online between 12.30 and 13.15 on 1 August 2021 Continue reading

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Join our trustee team in 2021/22

Could you lead our charity to: ensure it runs properly and enjoys success? We need all the help we can get. Don’t assume others will do it all or even as well as you could. We’re seeking new people to … Continue reading

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Gene.Vision website about aniridia launched

Medical information about aniridia, written for both patients and doctors is now available on a new website by Moorfields Eye Hospital. Gene.Vision contains in-depth, but easy to read, details about aniridia for patients and their families. For example there is … Continue reading

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Aniridia Network Online Conference 2020

This year’s Aniridia Day was more important than ever. The absence of our usual conference, due to pandemic restrictions, made it vital to find another way of connecting aniridia patients with one another, and with those who support them. We … Continue reading

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2020 Annual General Meeting

Held online on 21 June 2020 Continue reading

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Annual Report 2019-2020

Read details of what our officials, members and supporters did and our finances between 1 April 2019 and 31 March 2020. Thanks to great efforts by everyone who helped with these achievements Continue reading

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Get a call to ‘Ask the expert’ about aniridia

Six members got to speak with an expert who cares for lots of patients with aniridia and has a detailed knowledge of the field A doctor who specialises in aniridia very generously offerred one-to-one calls with those affected by the … Continue reading

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