Category Archives: ANUK news

The latest from the Aniridia Network UK board

Join our trustee team in 2020/21

Posted on April 19, 2020 by

Could you lead our charity to: ensure it runs properly and enjoys success? We need all the help we can get. Don’t assume others will do it all or even as well as you could. We’re seeking new people to … Continue reading →

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Get a call to ‘Ask the expert’ about aniridia

Posted on April 18, 2020 by

Would you like to speak with an expert who cares for lots of patients with aniridia and has a detailed knowledge of the field? A doctor who specialises in aniridia is very generously offering one-to-one calls with those affected by … Continue reading →

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2020 Annual General Meeting

Posted on April 13, 2020 by

138, Digbeth, Birmingham, B5 6DR on 1 June 2019 at 10:40am Continue reading →

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Posted in ANUK news | Tagged , , , , , | 1 Comment

Scotland & London Meet-Ups

Posted on November 23, 2019 by

This month we held 2 successful meet-ups in different parts of the UK, bringing together a variety of people affected by aniridia. In the north we were proud to hold our first ever event in Scotland, when trustee Eleanor Burke … Continue reading →

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Posted in ANUK news | Tagged , , , | 2 Comments

Our soapy gift to volunteers

Posted on June 9, 2019 by

We’ve said thank you for the great efforts of our volunteers by giving them soap. We also sold some to members to raise money. There’s a nice little story behind this oddity. The liquid hand soap is made by visually … Continue reading →

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Posted in ANUK news, Fundraising | Tagged , | 1 Comment

2019 Annual General Meeting

Posted on June 1, 2019 by

138, Digbeth, Birmingham, B5 6DR on 1 June 2019 at 10:40am Continue reading →

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Posted in ANUK news | Tagged , , , , , | 2 Comments

Annual Report 2018-19

Posted on May 27, 2019 by

Read details of what our officials did and our finances between last April 2018 this March in the Aniridia Network Annual Reports for 2018/19. In summary, thanks to great efforts by the team, Aniridia Network has a had a good … Continue reading →

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Dave’s trustee nomination

Posted on May 23, 2019 by

Dave McKay has nominated himself to be a trustee of the Aniridia Network. There will be an election for him and any other nomintees at the Annual General Meeting on 1 June. Dave has been our Conference Officer for the … Continue reading →

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£200,000 aniridia drug research, based and funded in the UK underway

Posted on May 12, 2019 by

Research into the growth of eyes with aniridia has begun, funded by Aniridia Network and two families in the UK. In 2018, for the first time, Aniridia Network excitedly partnered with Fight for Sight to offer a £15,000 grant for … Continue reading →

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Posted in ANUK news, Medical staff talking, Research | Tagged , , , , , , , , | 2 Comments

Five go to Paris for European Conference on Aniridia 2018

Posted on August 26, 2018 by

Five members of Aniridia Network travelled to Paris for a conference about the science and treatment of aniridia. They met the world’s top experts on aniridia and learned about their latest research and techniques. They also took part in a … Continue reading →

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Posted in ANUK news, Research | Tagged , , , | 1 Comment