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Category Archives: ANUK news
Scotland & London Meet-Ups
This month we held 2 successful meet-ups in different parts of the UK, bringing together a variety of people affected by aniridia. In the north we were proud to hold our first ever event in Scotland, when trustee Eleanor Burke … Continue reading
Our soapy gift to volunteers
We’ve said thank you for the great efforts of our volunteers by giving them soap. We also sold some to members to raise money. There’s a nice little story behind this oddity. The liquid hand soap is made by visually … Continue reading
2019 Annual General Meeting
138, Digbeth, Birmingham, B5 6DR on 1 June 2019 at 10:40am Continue reading
Posted in ANUK news
Tagged AGM, Annual General Meeting, annual report, charity, meeting, registration
2 Comments
Annual Report 2018-19
Read details of what our officials did and our finances between last April 2018 this March in the Aniridia Network Annual Reports for 2018/19. In summary, thanks to great efforts by the team, Aniridia Network has a had a good … Continue reading
Dave’s trustee nomination
Dave McKay has nominated himself to be a trustee of the Aniridia Network. There will be an election for him and any other nomintees at the Annual General Meeting on 1 June. Dave has been our Conference Officer for the … Continue reading
£200,000 aniridia drug research, based and funded in the UK underway
Research into the growth of eyes with aniridia has begun, funded by Aniridia Network and two families in the UK. In 2018, for the first time, Aniridia Network excitedly partnered with Fight for Sight to offer a £15,000 grant for … Continue reading
Posted in ANUK news, Medical staff talking, Research
Tagged amlexanox, ataluren, Fight For Sight, grant, Moorfields, Moosajee, PAX6, research, UCL Institute of Opthalmology
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Five go to Paris for European Conference on Aniridia 2018
Five members of Aniridia Network travelled to Paris for a conference about the science and treatment of aniridia. They met the world’s top experts on aniridia and learned about their latest research and techniques. They also took part in a … Continue reading
Posted in ANUK news, Research
Tagged Aniridia Europe, conference, European Conference on Aniridia, event
1 Comment
Reviews of Conference 2018
People at the Aniridia Network Conference 2018 said: “It gave an opportunity to learn about different aspects of aniridia. It made me feel like I really belonged there.” Meeting lots of people and having a good variety of speakers made it … Continue reading
Responses to feedback about Conference 2018
Thank you for all the excellent feedback about this years conference. We will certainly try to put in place many of the suggestions that were made. We will publish the survey results shortly. There were some points made, that we … Continue reading
Annual General Meeting 2018
The first Annual General Meeting of Aniridia Network, a charitable incorporated organisation was held at: Resource For London, 356 Holloway Road, London, N7 6PA on 14 April 2018 at 11:00am Continue reading
