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Category Archives: ANUK news
Annual Report 2020-2021
Read what our officials, members and supporters did and about our finances last year in the Aniridia Network Annual Report for 2020/21. Continue reading
Review of our achievements since last Aniridia Day
To mark Aniridia Day 2021, Aniridia Europe invite us and other paitent associations to make a 2 minute film about our achievements since Aniridia Day 2020. Here is the video and a transcript. More details to come soon in our … Continue reading
Members + Supporters clarification and data check
As a charity Aniridia Network has a responsibility to ensure that we are governed and keep data about people properly. A key part of this is ensuring that the right people can vote to elect our trustees and decide important … Continue reading
Notice of 2021 Annual General Meeting
Notice is hereby given that the Annual General Meeting (AGM) of Aniridia Network, a charitable incorporated organisation will be held online between 12.30 and 13.15 on 1 August 2021 Continue reading
Join our trustee team in 2021/22
Could you lead our charity to: ensure it runs properly and enjoys success? We need all the help we can get. Don’t assume others will do it all or even as well as you could. We’re seeking new people to … Continue reading
Posted in ANUK news
Tagged AGM, Annual General Meeting, meeting, trustees, volunteering
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Gene.Vision website about aniridia launched
Medical information about aniridia, written for both patients and doctors is now available on a new website by Moorfields Eye Hospital. Gene.Vision contains in-depth, but easy to read, details about aniridia for patients and their families. For example there is … Continue reading
Aniridia Network Online Conference 2020
This year’s Aniridia Day was more important than ever. The absence of our usual conference, due to pandemic restrictions, made it vital to find another way of connecting aniridia patients with one another, and with those who support them. We … Continue reading
2020 Annual General Meeting
Held online on 21 June 2020 Continue reading
Posted in ANUK news
Tagged AGM, Annual General Meeting, annual report, charity, meeting, registration
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Annual Report 2019-2020
Read details of what our officials, members and supporters did and our finances between 1 April 2019 and 31 March 2020. Thanks to great efforts by everyone who helped with these achievements Continue reading
Get a call to ‘Ask the expert’ about aniridia
Six members got to speak with an expert who cares for lots of patients with aniridia and has a detailed knowledge of the field A doctor who specialises in aniridia very generously offerred one-to-one calls with those affected by the … Continue reading
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