Category Archives: ANUK news

The latest from the Aniridia Network UK board

Reviews of Conference 2018

People at the Aniridia Network Conference 2018 said: “It gave an opportunity to learn about different aspects of aniridia. It made me feel like I really belonged there.” Meeting lots of people and having a good variety of speakers made it … Continue reading

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Responses to feedback about Conference 2018

Thank you for all the excellent feedback about this years conference. We will certainly try to put in place many of the suggestions that were made. We will publish the survey results shortly. There were some points made, that we … Continue reading

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Annual Reports 2016-2018

Details of what our officials did between April 2016 and March 2018  are in the Aniridia Network UK Annual Reports for 2016/17 and 2017/18 (pdf of PowerPoint). There is also the Aniridia Network UK Financial Reports for 2016/17 and 2017/18 (pdf) These … Continue reading

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Our first grant for UK research into aniridia

We are thrilled to announce a grant for research into aniridia! Aniridia Network UK has partnered with charity Fight For Sight to each contribute half the money to a £15,000 grant. The money is only available to UK academic or medical institutions. Get more … Continue reading

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Notice of 2018 Annual General Meeting

Notice is hereby given to members that the first Annual General Meeting of Aniridia Network, a charitable incorporated organisation  will be held at: Resource For London, 356 Holloway Road, London, N7 6PA on 14 April 2018 at 10:40am to transact the following … Continue reading

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Charity registration achieved

From today Aniridia Network has full charity status. This is excellent and exciting! It means we have more potential to get funds and support, leading towards being able to do much more. Previously we were only registered with HMRC as a charity … Continue reading

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London meet-up 2017

This evening we held an informal get-together in London, after the excellent, free Sight Village event. We met at Caffe Nero, 1 Wrights Lane, Kensington, London, W8 5RY. The meetup was hosted by James, one of the ANUK’s trustees, and volunteer Glen, both of whom have aniridia … Continue reading

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Attending the Genetic Alliance Conference 2017

Today Genetic Alliance held their Annual Conference in London, entitled “Upskilling Our Members”, with many charities taking part. Aniridia Network trustee James Buller attended the event, taking the opportunity to engage with many leaders of charities very similar to our … Continue reading

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New Treasurer and bank

We have a new Treasurer. Emily Nash took up the role at the start of March 2017. Trustees Katie, James and Martin voted to co-opt Emily on to the Board at their February meeting. The post had been vacant for … Continue reading

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