Monthly Archives: February 2015

Take a (No) #IrisSelfie to raise awareness and funds for aniridia

We want to raise awareness of aniridia, help those who are visually impaired because of it, and support treatment research. So we want you to post a photo of your eye, WITH or WITHOUT an iris on Twitter / Facebook / … Continue reading

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Milton Keynes meet-up

We met on met to discuss aniridia and celebrate Rare Disease Day 2015 at Whetherspoons at XScape, Milton Keynes. We had a great evening talking about dealing with school, doctor and even being a stuntman while having aniridia. If you want to meet more … Continue reading

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Befrienders who speak languages needed

The Aniridia Network UK Befriending Scheme has successfully created over thirty five buddy relationships in the last two years. We can only do this with the kindness of those of you who are willing to make contact with other families, who have … Continue reading

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Drug company donates £1,000 to ANUK

A global biopharmaceutical company has provided a donation to ANUK for which we are extremely grateful. PTC Therapeutics is the company that discovered and is developing ataluren for the treatment of disorders due to a genetic nonsense mutation. Approximately 20% of patients … Continue reading

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