Monthly Archives: January 2015

Assist research by joining a patient registry

It’s now easier than ever to assist research into aniridia and similar conditions. A patient registry has been set up and we encourage any of you with (with children who have) the following conditions to add your/their details to it. … Continue reading

Rate this:

Posted in National Institute for Health WAGR study, Research | Tagged , | Leave a comment

Aniridia doesn’t stop Jessica doing all kinds of sports

ByJessica I am 21 living in London, have partial aniridia and have never let it stop me from any kind of sport. know some people get worried about sporting with an eye condition like this and am fully aware that … Continue reading

Rate this:

Posted in Patients' tales | Tagged , | 1 Comment

Change to how you can help ANUK by shopping on Amazon

There is an easy ways to raise money for us simply by shopping on It costs you nothing. Before buying do ONE of the following: come to our website and use the Julbo sunglasses for infants link on the … Continue reading

Rate this:

Posted in ANUK news, Fundraising | Tagged | Leave a comment

Invitation to aniridia youth summer camp 2015 in Italy

Registration deadline 1 February 2015 Aged 15-25 and have aniridia? Parent or sibling of such a person? You are invited to a fabulous activity holiday in Italy with 80 others from around Europe. The camp will run 4-14 August 2015 and will … Continue reading

Rate this:

Posted in ANUK news, Other agencies | Tagged , , | Leave a comment