Monthly Archives: June 2014

Teenager with aniridia coaches other disabled children

Lois, 16 who has aniridia has been made a lead sports coach by The Change Foundation. She is teaching others to play cricket The Change Foundation believes in changing lives through sport and are running a project that gives disabled … Continue reading

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Tracy with aniridia talks of her job as an Eye Clinic Liaison Officer

Here’s a recording of an interview with one of our members who has aniridia. She has recently started work as an ECLO, providing information, advice and practical or emotional support on living with sight loss. The interview is by VI … Continue reading

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Young people with aniridia needed for sleep research

Scientists want adolescents and young adults to take part in a study to learn more about how an aniridia-related gene affects sleep. Are you the kind of person they are recruiting? aged 10 to 20 years old with aniridia medically stable … Continue reading

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Aniridia and Nystagmus meetings in Leicester on 28 June 2014

4:30pm, Lounge Bar, Mercure Leicester The Grand Hotel, Granby Street, Leicester, LE1 6ES IMPORTANT TO RSVP: meetup@aniriida.org.uk Anyone affected by aniridia, including relatives are invited to join us in Leicester to find out more about each other and discuss aniridia … Continue reading

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Visiting Disneyland with aniridia

Earlier this month Laura asked on the Aniridic Family Facebook group “Has anyone visiting Disneyland Paris been able to get a priority card for a child registered blind? Our son Josh is nearly 8 years old. He is not great … Continue reading

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Questions & answers on aniridia

Session at Aniridia Network UK Conference 2014 By: Panel of experts and individuals affected by aniridia A chance to ask that question that you always remember on the way home from your appointment or that there never seems to be … Continue reading

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Sighted guiding and general mobility presentation

Session at Aniridia Network UK Conference 2014 By: Rick Allbrook Rick Allbrook from Guide Dogs for the Blind Association (GDBA) discussed their role as a mobility charity and how they support people with sight loss to get out and about independently. … Continue reading

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Protected: Living with aniridia – A generational perspective presentation

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Emerging molecular therapies for aniridia presentation

Session at Aniridia Network UK Conference 2014 By: Professor Colin E. Willoughby The first part of this talk introduced the genetics of aniridia and in particular, the underlying molecular mechanisms, as this will form the basis to understand the developments in … Continue reading

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Stem cell research and treatment for aniridia presentation

Session at Aniridia Network UK Conference 2014 Introducing Cells For Sight By: Dr Alex Shortt PhD FRCOphth The Cells for Sight Transplantation and Research Programme. is a group of scientists and clinicians who work together at Moorfields Eye Hospital and the … Continue reading

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