Monthly Archives: February 2014

TV programme looking for people with aniridia

Optomen Television, the BAFTA award-winning producers of Mary Portas: Queen of Shops, Kevin McCloud’s Man Made Home and Heston Blumenthal’s Feast is producing a brand new TV medical series for the Discovery Network and needs your help.   The programme … Continue reading

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Youth With Aniridia In Europe summer camp 2015

A summer camp in north east Italy for young people with aniridia across Europe is being organised. You can be involved with this exciting event The camp will be in summer 2015 in a national park in the Venetia region … Continue reading

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Open letter to anyone with a child recently diagnosed with aniridia

I am writing this to give reassurance and a firm (but virtual) shoulder to lean on. No doubt you have just returned from the hospital, numb with the news that your child has been diagnosed with a rare eye disorder … Continue reading

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Posted in Parents' accounts | 1 Comment