Monthly Archives: August 2013

Diagnosis difficulties – a father’s success

Three years after complaining that his child was not diagnosed with aniridia until she was a year old, a dad has spurred change that could prevent it happening to others. Fuad’s campaign has led to the NHS recognising that in … Continue reading

Rate this:

Posted in Medical staff talking, Parents' accounts | Tagged , | Leave a comment

Protected: A mother and son’s perspectives of aniridia

There is no excerpt because this is a protected post.

Rate this:

Posted in Parents' accounts, Patients' tales

Meet-up in Bristol on 5 October 2013

4:30pm, Terrace Bar/Coffee Shop, Bristol City Centre Marriot Hotel, 2 Lower Castle Street, Old Market, Bristol, BS1 3AD RSVP: meetup@aniriida.org.uk Anyone affected by aniridia, including relatives are invited to join us in Bristol to find out more about each other … Continue reading

Rate this:

Posted in ANUK news, Other agencies, Parents' accounts, Patients' tales | Tagged , , | Leave a comment

A mother and son’s perspectives of aniridia

Thirteen and a half years ago, if you had asked me what Aniridia is, I would not have a clue. But an event which happened in 1999 changed all of that: my son Daniel was born. The first few months … Continue reading

Rate this:

Posted in Parents' accounts, Patients' tales | Leave a comment

£1,000 donation from Ride London team

We had a £1000 donation from “the Fairy Queen Dream Team”, who completed the RideLondon-Surrey 100 cycling event today. The team was headed up by James, father of Ella who has WAGR/11p Deletion Syndrome. They were primarily raising funds for … Continue reading

Rate this:

Posted in ANUK news, Fundraising | Tagged , | Leave a comment