Monthly Archives: July 2013

1 tweet reaps new member, volunteer and website for ANUK

I monitor the internet for mentions of ‘aniridia’. Last week Phil from Liverpool tweeted that his wife, who has aniridia, had been declared ineligible for Personal Independent Payments. I checked our database and found no record of her. So I … Continue reading

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Cakes, car washes and stocks at RNC/ANUK fundraiser

On the 1 and 2 July 2013, Rosie, Megan and I joined together as a group to raise money for Aniridia Network UK and our further education college RNC (Royal National College for the Blind). Over the 2 days, we held 3 events which … Continue reading

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Review of Aniridia Network UK Conference 2013

By Sarah Conference 2013 was the first Aniridia Network UK (ANUK) conference that I had attended. I had quite an intense experience as I was there in both personal and official capacities – having aniridia and being part of the conference … Continue reading

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Posted in ANUK news, Medical staff talking, Parents' accounts, Patients' tales, Research, Welfare experts advising | Tagged , | 1 Comment

Leicester researchers seek under 7s with aniridia

Researchers in Leicester are seeking children with aniridia to take part in a study of the retina and optic nerve. Would your child like to participate? They are monitoring the normal and abnormal development of the retina and optic nerve in … Continue reading

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Phil’s triathlon raises over £500 for ANUK

A massive thank you and well done to Phil who has raised £560 for Aniridia Network UK by running a triathalon. The race at Ripon racecourse in Yorkshire was his first ever attempt at the swimming, cycling, running challenge. Here’s … Continue reading

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