Monthly Archives: May 2013

Conference 2013 – a parent’s review: ‘Good Vibrations’

By Susan, the parent of a 4-year-old daughter with aniridia and WAGR/11p Deletion Syndrome. I am so glad I went to this year’s Aniridia Network UK (ANUK) annual conference. I had almost decided to give it a miss but it turned … Continue reading

Rate this:

Posted in Parents' accounts | Tagged , | 1 Comment

Jenny and other blind people are let down by bus companies

ITV West Country News interviewed our member with aniridia – Jenny – who says she frequently misses her stop because there are no automated stop announcements on buses. The charity Guide Dogs for the Blind is calling for audible announcements … Continue reading

Rate this:

Posted in Other agencies, Patients' tales | Tagged , , | Leave a comment

Recruitment for the Optimum VI project: Early development and support of babies and young children with a visual impairment

This important national study is being led by Great Ormond Street Hospital Developmental Vision team (Dr. Naomi Dale and Dr. Alison Salt). This is the first national study to investigate early development and support in babies and young children with … Continue reading

Rate this:

Posted in Research | Leave a comment

Protected: Woman with aniridia is first to get new corneal stem cell transplant in UK

There is no excerpt because this is a protected post.

Rate this:

Posted in Medical staff talking, Patients' tales, Research

Protected: Life with aniridia by Ben and Lois

There is no excerpt because this is a protected post.

Rate this:

Posted in Patients' tales | Tagged ,