Meet-up in Newcastle 24 February 2013

People in North East England affected by aniridia came together in on Sunday 24 February for lunch and chat and fun. The lunchtime meet-up was in Zizzi in Metrocentre, Newcastle

Partners, family and friends of people affected by aniridia were all welcome . Everyone’s thanks goes to two of our members with aniridia, Claire and Beth  for organising the afternoon.

To promote the event in advance, Claire was interview by RNIB Insight Radio.

Afterwards Claire said “We had 8 people at the meal which everyone enjoyed. It was a good learning curve and we can use it to make any future North East events better.”

Rare Disease Day

We are organised the meet-ups at this time to mark Rare Disease Day. It’s an annual international initiative to raise awareness amongst the general public and decision-makers about conditions like aniridia and their impact on people’s lives. By going along people not only enjoyed themselves but also help generate publicity for the day. Find out more at the Rare Disease Day website and follow it on Facebook.

Organise a meet-up in your area

If you want to meet more people near you who are affected by aniridia, how about arranging an event to do so? It is easy to do and we’ll help with the publicity. Contact with your ideas.

About Aniridia Network

A charity support group for people with the genetic visual impairment aniridia and their families in the UK and Ireland. Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. Founded in 2000. First registered as a charity in 2011 and fully in 2018.
This entry was posted in Aniridia Network news, Parents' accounts, Patients' tales and tagged , . Bookmark the permalink.

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