Monthly Archives: September 2012

Paralympians with aniridia

The most decorated paralympian ever has aniridia. She and at least two athletes who have aniridia were at the London 2012 Paralympics. There might also have been a runner and a physiotherapist with aniridia too. Most decorated Trischa Zorn from … Continue reading

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James @ National Institutes of Health

Introduction Earlier this year I travelled to the USA to take part in medical research related to aniridia. It and the accompanying holiday was a very special experience. Background National Institutes of Health The National Institutes of Health in the … Continue reading

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Posted in National Institute for Health WAGR study, Patients' tales, Research | Tagged , , , , , , | 1 Comment

Child with aniridia walked to fundraise for ANUK

A four year old child with sporadic aniridia has raised over £1,000 by walking two miles in aid of Aniridia Network UK (ANUK). Tora, is blind in one eye and only has peripheral vision in the other. She was joined … Continue reading

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Combating overhaning branches

I’ve got an idea in my head to do something about plants that obstruct the pavement. I’m fed up with ducking, flinching or actually getting scratched by the branches or leaves of things growing in people’s front gardens. That’s my … Continue reading

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Posted in Campaigns, Patients' tales | Tagged , | 2 Comments

Unveiling the aniridia visor

Two baseball caps put together to block bright floors as well as sun. Continue reading

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