Monthly Archives: June 2012

Canny Annie

You may have seen the news of the massive thunder storm over Newcastle on Thursday.  I knew there was some flooding because my PA had described some that on the bus we passed a torrent of water flowing fast down a … Continue reading

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The doctor told me my newborn baby girl was blind

Have you ever been punched in the gut? Punched so hard that you can’t breathe, that you’re nauseous and you can’t think of anything but the shock? That’s exactly how I felt on December 12, 2011 when the doctor told … Continue reading

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Edinburgh guide dog training: Qualifying and back home

On Wednesday I did one of the routes we had done many times over the two weeks with 3 people following. In my head it was the worst walk of the two weeks and I cried at the end. One … Continue reading

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1st European Conference on Aniridia: Day 3

Day 1 and day 2 had been the scientific conference. Today was for a wider audience: those affected by aniridia.  There were a series of short presentations, alternating between Norwegian and English. The English ones were slightly simplified, shortened versions … Continue reading

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1st European Conference on Aniridia: Day 2

Saturday was full of presentations from various doctors and researchers. Professor van Heyningen gave two talks about the genetic aspects of aniridia. This included looking at the full range of the effects of PAX6 mutation, plus aniridia without PAX6 mutations … Continue reading

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1st European Conference on Aniridia: Day 1

The hotel’s breakfast buffet was certainly broad but not quite enough to include staple English breakfast elements such as bacon and hash browns or fried bread. It was sautéed potatoes and mini sausages instead. After breakfast I took a walk … Continue reading

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1st European Conference on Aniridia: Arrival

I like visiting other cities and I decided it was time to get a more international angle and more medical knowledge on aniridia. So I’ve come to the 1st European Aniridia Conference in Oslo. This evening I left work and … Continue reading

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Edinburgh guide dog training: Day 14

Today has been the best day out of the whole of the training. It’s been one of those days where I feel like I am just walking along not having to concentrate too much and getting great work from Annie. … Continue reading

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Edinburgh guide dog training: Days 11, 12 and 13

Firstly I would like to apologise for the lack of updates. I have had my husband Graham up visiting for a few days and I have also not felt 100%. As well as having aniridia I have bipolar disorder and … Continue reading

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Edinburgh guide dog training: Day 10

This morning we did some obedience and food refusal with the dogs.  Annie was great doing her obedience. She did take a look at the chocolate biscuits on the floor but I gave her a flick on the lead and … Continue reading

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