Monthly Archives: November 2011

Charity strategy update

Plans for the next two years were the result of the trustee’s latest strategy day. We decided the charity’s priorities for 2011-12 were: increasing the number of volunteers boosting funds raised from donors strengthening how we administer the organisation. Katie, … Continue reading

Rate this:

Posted in ANUK news | Tagged , , , , , , | Leave a comment

Give as you Live – a simple way to raise money for Aniridia Network UK

Would you like to raise money for Aniridia Network UK? Do you shop online? Then why not join Give as you Live? It’s an online shopping portal run by Everyclick.com featuring many well known high street stores such as: Marks … Continue reading

Rate this:

Posted in ANUK news | Tagged | Leave a comment

Protected: Being an exam subject

There is no excerpt because this is a protected post.

Rate this:

Posted in Patients' tales | Tagged ,

Harry wins teen “Caring For Others” award

A boy with aniridia has won an award for his caring nature. Harry, 16, from the Exeter area won the “Caring For Others” category in the Teen Awards run by the Exeter Express & Echo newspaper. The awards “show that teenagers … Continue reading

Rate this:

Posted in Parents' accounts | Tagged | Leave a comment

Protected: Jenny’s career – Part 2: Looking for work

There is no excerpt because this is a protected post.

Rate this:

Posted in Patients' tales | Tagged ,

Fact check on Daily Mail piece about teenager with WAGR/11p deletion syndrome

A recent Daily Mail article aroused our interest. The piece features Gemma who has WAGR, also known as 11p deletion syndrome after its genetic cause. It includes aniridia among its possible symptoms. We were glad to see a national newspaper … Continue reading

Rate this:

Posted in Medical staff talking, Other agencies | Tagged , , , , | Leave a comment

Protected: 5 girls and 4 guide dogs go to Bognor Regis

There is no excerpt because this is a protected post.

Rate this:

Posted in Patients' tales | Tagged ,

Protected: At school with aniridia

There is no excerpt because this is a protected post.

Rate this:

Posted in Patients' tales | Tagged , , , , ,

Give as you Live – a simple way to raise money for Aniridia Network UK

Would you like to raise money for Aniridia Network UK? Do you shop online? Then why not join Give as you Live? It’s an online shopping portal run by Everyclick.com featuring many well known high street stores such as: Marks … Continue reading

Rate this:

Posted in ANUK news | Tagged | Leave a comment

Charity strategy update

Plans for the next two years were the result of the trustee’s latest strategy day. We decided the charity’s priorities for 2011-12 were: increasing the number of volunteers boosting funds raised from donors strengthening how we administer the organisation. Katie, … Continue reading

Rate this:

Posted in ANUK news | Tagged , , , , , , | Leave a comment