Tag Archives: fundraising

Protected: Presentations from Conference 2012

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Posted in ANUK news, Education professionals sharing, Medical staff talking, Parents' accounts | Tagged , , ,

Donate to Aniridia Network UK via ebay

Do you buy or sell on eBay? Now you can and raise money for Aniridia Network UK at the same time. We’ve registered with Mission Fish – ebay’s charity partner website. So now you can sell an item on ebay … Continue reading

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Peter and Lyn include Aniridia Network UK in their wills

By Peter and Lyn Having recently retired, our thoughts turned to updating our wills. We have always been extremely grateful for the support and advice we received from others when our son James was diagnosed with aniridia back in 1979. Back … Continue reading

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Natasha and Violet: fundraising and media stars

  Natasha, mum to Violet with aniridia responded to our calls for fundraising and media volunteers. She’s been holding raffles and selling goods via Facebook in her home town of Halifax, West Yorkshire. The current drive is for Easter eggs … Continue reading

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Prepare for Rare Disease Day: Wednesday 29 February 2012

Rare but strong together A rare medical condition affects less than 1 in 2000 people. Aniridia affects about 1 in 100,000 people. Even fewer have WAGR/11p deletion syndrome making it ultra-rare. But collectively people who have rare conditions are not … Continue reading

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Charity strategy update

Plans for the next two years were the result of the trustee’s latest strategy day. We decided the charity’s priorities for 2011-12 were: increasing the number of volunteers boosting funds raised from donors strengthening how we administer the organisation. Katie, … Continue reading

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Give as you Live – a simple way to raise money for Aniridia Network UK

Would you like to raise money for Aniridia Network UK? Do you shop online? Then why not join Give as you Live? It’s an online shopping portal run by Everyclick.com featuring many well known high street stores such as: Marks … Continue reading

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Give as you Live – a simple way to raise money for Aniridia Network UK

Would you like to raise money for Aniridia Network UK? Do you shop online? Then why not join Give as you Live? It’s an online shopping portal run by Everyclick.com featuring many well known high street stores such as: Marks … Continue reading

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Charity strategy update

Plans for the next two years were the result of the trustee’s latest strategy day. We decided the charity’s priorities for 2011-12 were: increasing the number of volunteers boosting funds raised from donors strengthening how we administer the organisation. Katie, … Continue reading

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Katie raises over £800 doing the Great North Run

You may remember that recently Katie Atkinson took part in the Great North Run to raise money for Aniridia Network UK. Katie completed the half marathon race in 3 hours and 40 minutes and raised over £750 for Aniridia Network … Continue reading

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