Aniridia Foundation International is a USA based non-profit charitable organization dedicated to assisting those with low vision or blindness due to the genetic eye disease Aniridia. Their members consist of those with aniridia, their families, physicians, researchers, and teachers.
The organisation if one of the main sources of support for those in North America as well as having members from all around the world. See also Aniridia Foundation International on Facebook
A group of parents, family members and individual directly affected by aniridia who are working on developing a social network, public awareness, fundraising, research, doctor liason/support and education. This group is based in the USA but is open to anyone from around the world. See also United Families Of Aniridia on Facebook
The Aniridia Network International is an online support group that aims to bring people affected by aniridia from around the globe closer together as well as providing practical support and information mainly via the Yahoo email discussion group
A support group for everyone affected by WAGR/11p deletion syndrome. The group is open to anyone around the world including those from the UK. See also FWAGR/11p Deletion Syndrome on Facebook.
A collaboration between aniridia groups in Europe, including Aniridia Network UK. The European Network aims to:
- collaborate in spreading proper and correct information on aniridia and the best available treatments
- support and inspire research by creating scientific interest on aniridia and associated illnesses and connecting professionals both at local and international level
- promote the development of national and international guidelines on aniridia
- encourage people affected by aniridia to create associations in other countries
The French aniridia association. See also Gêniris France on Facebook.
The Italian aniridia association.
The Norwegian aniridia association. See also Aniridi Norge on Facebook.
The Spanish aniridia association.See also Asociación Española de Aniridia on Facebook.
The Swedish aniridia associaiton. See also Aniridi Sverige on Facebook
German aniridia and WAGR support group. See also Aniridie-WAGR Selbsthilfegruppe on Facebook.
Finnish aniridia support group.