Comments for Aniridia Network UK

Comment on London meet up: A personal review by Andrew Edwards

Andrew Edwards — Thu, 22 Dec 2011 18:14:50 +0000

After reading Keith’s post, it got me thinking again.
His post reminds me a lot about me when i came to the AGM.
By the age of 40 (at the time). I thort that i managed my condition prity well and did not expect to find out any thing new.
But then meet ing peaple with the same condition and chatting then finding out about the APD thing.
Then at the Social event chating to others and finding my self helping peaple to understand and encuraging them.
Keiths post got me thinking at may be this is more the road that the Charity should be taking.
As has been said, their are mutch bigger and better placed charitys to finance and promote Treatment and Reserch.
Yes the charity needs to keep a finiger on the pulse and conected to the other charitys and societys.
But i feel that as a small orgernisation, the Social meeting could give Help and Support to peaple as mutch as any thing else..

Comment on Manchester for annual meeting 2012 by Mark

Mark — Tue, 20 Dec 2011 20:33:11 +0000

Fantastic to have a date and venue so far in advance, great work guys.

Comment on Protected: On your bike by Lyn Buller

Lyn Buller — Tue, 20 Dec 2011 18:21:16 +0000

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Comment on Protected: See what we can do by Lyn Buller

Lyn Buller — Tue, 20 Dec 2011 18:16:02 +0000

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Comment on Manchester for annual meeting 2012 by Coventry for next meet-up: ice skating/social | Aniridia Network UK

Coventry for next meet-up: ice skating/social | Aniridia Network UK — Fri, 09 Dec 2011 13:14:24 +0000

[...] too that in our main annual meeting next year will be May in Manchester. GA_googleAddAttr("AdOpt", "1"); GA_googleAddAttr("Origin", "other"); [...]

Comment on London meet-up review: A big success by Coventry for next meet-up: ice skating/social | Aniridia Network UK

Coventry for next meet-up: ice skating/social | Aniridia Network UK — Fri, 09 Dec 2011 13:14:21 +0000

[...] is one of our adult members with aniridia who came to our very successful first meet-up in London in November. He enjoyed it so much he has decided to organise another one where he [...]

Comment on Manchester for annual meeting 2012 by London meet-up review: A big success | Aniridia Network UK

London meet-up review: A big success | Aniridia Network UK — Fri, 09 Dec 2011 12:15:41 +0000

[...] Around the World ← Manchester for annual meeting 2012 London meet up: A personal review [...]

Comment on London meet up: A personal review by London meet-up review: A big success | Aniridia Network UK

London meet-up review: A big success | Aniridia Network UK — Fri, 09 Dec 2011 12:15:37 +0000

[...] Aniridia Around the World ← Manchester for annual meeting 2012 London meet up: A personal review → [...]

Comment on Trustees by jill halliwell

jill halliwell — Sat, 11 Jun 2011 20:03:36 +0000

hi , im mummy to lacey , who has aniridia, and i would like to meet up with other parents going through the same things, i live in merseyside, jill.

Comment on Support Us by mrs patricia robinson

mrs patricia robinson — Mon, 02 May 2011 20:27:24 +0000

hi im going to do a skydive this year to raise money and awareness of this condition , but have been unable to get a proper sponsor form , are you able to help as i would like to start collecting sponsors soon. thank you .