Category Archives: Parents’ accounts

Bringing up children with aniridia and the feelings it generates.

Sunglasses wearing dog has aniriida

Posted on March 10, 2012 by

Isn´t this dog cute, with its sunglasses? She has aniridia! Rosa from the Spanish aniridia association happened to meet, Ana, a generous person who adopted this abandoned dog as her pet – nobody else wanted it because it had aniridia. It is now happy with sunglasses … Continue reading →

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Peter and Lyn include Aniridia Network UK in their wills

Posted on March 8, 2012 by

By Peter and Lyn Having recently retired, our thoughts turned to updating our wills. We have always been extremely grateful for the support and advice we received from others when our son James was diagnosed with aniridia back in 1979. Back … Continue reading →

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Invitation to the Oslo Aniridia Conference

Posted on March 7, 2012 by

Aniridi Norge (the Norwegian aniridia association) has organised the first European scientific conference about aniridia as well as an international gathering for the aniridia community. You are invited between 8 and 10 June 2012. James and Katie from Aniridia Network … Continue reading →

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Natasha and Violet: fundraising and media stars

Posted on March 6, 2012 by

  Natasha, mum to Violet with aniridia responded to our calls for fundraising and media volunteers. She’s been holding raffles and selling goods via Facebook in her home town of Halifax, West Yorkshire. The current drive is for Easter eggs … Continue reading →

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Harry wins teen “Caring For Others” award

Posted on November 25, 2011 by

A boy with aniridia has won an award for his caring nature. Harry, 16, from the Exeter area won the “Caring For Others” category in the Teen Awards run by the Exeter Express & Echo newspaper. The awards “show that teenagers … Continue reading →

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Thoughts on the Special Educational Needs & Disability Green paper

Posted on June 26, 2011 by

I (Laura) recently attended parent consultation meetings run by NBCS/RNIB on the Government’s reform proposals in the Special Educational Needs & Disability (SEND) Green paper. It leaves a lot to be desired!! I have to stress that this is not definitely … Continue reading →

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Diagnosis difficulties – a father’s experience

Posted on April 10, 2011 by

Fuad and daughter Shakila If you follow Aniridia Network UK on Facebook you may have already read the story of Fuad and his daughter Shakila featured in these articles Article in The Voice Article in The Standard Article in The … Continue reading →

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