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Category Archives: Medical staff talking
A rare glimpse into the ordinary
The National Institutes Of Health have published an article and video about their study in to obesity and WAGR/11p deletion syndrome. It features Aniriida Network UK trustee James who took part as a ‘aniridia only’ patient. You can also read … Continue reading
Posted in Medical staff talking, National Institute for Health WAGR study
Tagged NIH, obesity, WAGR
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Protected: Presentations from Conference 2012
There is no excerpt because this is a protected post.
Posted in ANUK news, Education professionals sharing, Medical staff talking, Parents' accounts
Tagged conference, fundraising, glaucoma, QTVI
Invitation to the Oslo Aniridia Conference
Aniridi Norge (the Norwegian aniridia association) has organised the first European scientific conference about aniridia as well as an international gathering for the aniridia community. You are invited between 8 and 10 June 2012. James and Katie from Aniridia Network … Continue reading
Posted in Medical staff talking, Parents' accounts, Patients' tales, Research
Tagged Aniridi Norge, conference, meeting, Oslo
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Dr Agarwal describes using a glued iris prosthesis
Ophthalmic surgeons have described various techniques to fix iris deficiencies. For the most part, these improve the patient’s visual quality. In this column, Dr Agarwal describes a surgical technique of using a glued iris prosthesis, namely a PMMA aniridia intraocular … Continue reading
Fact check on Daily Mail piece about teenager with WAGR/11p deletion syndrome
A recent Daily Mail article aroused our interest. The piece features Gemma who has WAGR, also known as 11p deletion syndrome after its genetic cause. It includes aniridia among its possible symptoms. We were glad to see a national newspaper … Continue reading
Posted in Medical staff talking, Other agencies
Tagged cancer, IWSA, pancreatitis, press, WAGR
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New approach to keratoplasty may be better for patients with iris implants
A study has found that Descemet’s stripping endothelial keratoplasty (DSEK) can be better than penetrating keratoplasty in eyes with an artificial iris. In eyes with partial or complete aniridia it helps restore clarity of corneas and may mean quicker improvement … Continue reading
Capsular Tension Rings and Aniridia Rings in Pediatric Cataract surgery: A Case Series
Here are some slides detailing a medical study into the success of implants for aniridia patients. Credit: The original slideshow and transcript We also recently came across a page showing the various implants made by Morcher available for people with aniridia. … Continue reading
Protected: Central Auditory Processing Disorder presentation
There is no excerpt because this is a protected post.
Posted in Medical staff talking
Tagged auditory processing disorder APD, capd, conference
