About us

Aniridia Network UK is a support group for people with aniridia and their families. It was set up in 2000.

Our entirely unpaid team of trustees and volunteers consists mainly of people with aniridia and some parents of children with aniridia.

The majority of our funding comes from membership fees.

In April 2011 we were recognised as a charity by HMRC: reference XT26830.

Our Vision

Our vision is that people with/associated with aniridia are hopeful, confident, supported and well informed regarding aniridia. We do this by:

• creating a positive, supportive network of families, individuals and professionals in order to share ideas, experiences and give emotional support
• providing information, particularly to health professionals, patients and their families, about aniridia, the related conditions and their implications for the patient
• providing information on education and the welfare system and life skills relevant to aniridia and related conditions
• promoting research into the causes, effects, treatment and management of aniridia and related conditions and publicising the results.

Our Values

We aim to be:

• Informative
• Specialised
• Approachable
• Inclusive
• Positive
• Supportive

Our Beliefs

1. Every person with/associated with aniridia:
   • has their own story to tell and something and unique to contribute
   • can benefit from shared experiences.
2. People with aniridia can have a fulfilling life and contribute to society.
3. People should have accurate and up-to-date information about all aspects of aniridia
4. Everyone with aniridia should receive the best quality: medical, education and welfare services appropriate to their individual needs.
5. Medical research and treatments can benefit people with aniridia.