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Monthly Archives: March 2012
Donate to Aniridia Network UK via ebay
Do you buy or sell on eBay? Now you can and raise money for Aniridia Network UK at the same time. We’ve registered with Mission Fish – ebay’s charity partner website. So now you can sell an item on ebay … Continue reading
Sunglasses wearing dog has aniriida
Isn´t this dog cute, with its sunglasses? She has aniridia! Rosa from the Spanish aniridia association happened to meet, Ana, a generous person who adopted this abandoned dog as her pet – nobody else wanted it because it had aniridia. It is now happy with sunglasses … Continue reading
Aniridia Europe board meeting and networking event
After the establishment of Aniridia Europe its board members met in Paris on 19 and 20 November 2011. It was a chance to meet face to face and also for new members from Germany and Bulgaria to meet us all for the first … Continue reading
Peter and Lyn include Aniridia Network UK in their wills
By Peter and Lyn Having recently retired, our thoughts turned to updating our wills. We have always been extremely grateful for the support and advice we received from others when our son James was diagnosed with aniridia back in 1979. Back … Continue reading
Invitation to the Oslo Aniridia Conference
Aniridi Norge (the Norwegian aniridia association) has organised the first European scientific conference about aniridia as well as an international gathering for the aniridia community. You are invited between 8 and 10 June 2012. James and Katie from Aniridia Network … Continue reading
Posted in Medical staff talking, Parents' accounts, Patients' tales, Research
Tagged Aniridi Norge, conference, meeting, Oslo
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Natasha and Violet: fundraising and media stars
Natasha, mum to Violet with aniridia responded to our calls for fundraising and media volunteers. She’s been holding raffles and selling goods via Facebook in her home town of Halifax, West Yorkshire. The current drive is for Easter eggs … Continue reading
