Monthly Archives: November 2011
Charity strategy update
Plans for the next two years were the result of the trustee’s latest strategy day. We decided the charity’s priorities for 2011-12 were: increasing the number of volunteers boosting funds raised from donors strengthening how we administer the organisation. Katie, … Continue reading
Posted in ANUK news
Tagged charity, fundraising, meeting, membership, strategy, trustees, volunteering
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Give as you Live – a simple way to raise money for Aniridia Network UK
Would you like to raise money for Aniridia Network UK? Do you shop online? Then why not join Give as you Live? It’s an online shopping portal run by Everyclick.com featuring many well known high street stores such as: Marks … Continue reading
Harry wins teen “Caring For Others” award
A boy with aniridia has won an award for his caring nature. Harry, 16, from the Exeter area won the “Caring For Others” category in the Teen Awards run by the Exeter Express & Echo newspaper. The awards “show that teenagers … Continue reading
Fact check on Daily Mail piece about teenager with WAGR/11p deletion syndrome
A recent Daily Mail article aroused our interest. The piece features Gemma who has WAGR, also known as 11p deletion syndrome after its genetic cause. It includes aniridia among its possible symptoms. We were glad to see a national newspaper … Continue reading
Posted in Medical staff talking, Other agencies
Tagged cancer, IWSA, pancreatitis, press, WAGR
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Give as you Live – a simple way to raise money for Aniridia Network UK
Would you like to raise money for Aniridia Network UK? Do you shop online? Then why not join Give as you Live? It’s an online shopping portal run by Everyclick.com featuring many well known high street stores such as: Marks … Continue reading
Charity strategy update
Plans for the next two years were the result of the trustee’s latest strategy day. We decided the charity’s priorities for 2011-12 were: increasing the number of volunteers boosting funds raised from donors strengthening how we administer the organisation. Katie, … Continue reading
Posted in ANUK news
Tagged charity, fundraising, meeting, membership, strategy, trustees, volunteering
Leave a comment
Sinead’s introduction
Hi, my name is Sinead. I am 29 years old. I have aniridia, nystagmus, coloboma, and glaucoma. I am registered blind as I have only have 5% vision. I live in the Republic of Ireland and am the country’s first … Continue reading
Aniridia Network UK
Beth Laskey
katieanuk
Jenny
James
Laura
Sinead
